Recently, I had the opportunity to visit Bridgeport, West Virginia and join the experts behind the Mountaineer Autism Project for their 2018 conference. The conference brought together families of children with Autism Spectrum Disorders (ASD) and the providers who serve them. I helped kick things off by outlining the Medicaid benefits for children with ASD, […]
Previously, Austin shared the story of bringing baby girl Melanie into her family’s life, and how TRICARE and Medicaid helped cover her child’s complex medical needs. Today, this amazing mom shares more about Melanie’s medical journey, and how, inspired by their youngest, this family became health care policy advocates. This blog was originally published by […]
In honor of the “Month of the Military Child”, Speak Now for Kids published this story to help readers learn how military families like the Carriggs meet the health care needs of their children with complex medical conditions. This is the first blog post of a two part series by Austin Carrigg, the mother of three […]
By Rylin Rodgers, Riley Child Development Center Too often policy discussions and budget debates are framed in terms of winners and losers at the program, department, or budget line level. Families raising children who have health care needs and disabilities are impacted every day by public policy, systems, and services related to health care, education, housing, […]
As House leaders scramble to get enough votes to send the American Health Care Act to the Senate, there is a lot of horse-trading going on. None of it to the benefit of kids enrolled in Medicaid or private insurance. The most recent Affordable Care Act provision on the chopping block is the Essential Health […]
By Sophia Jan, Ahaviah Glaser, Rebecca Kim of Children’s Hospital of Philadelphia (CHOP) Policy Lab Current proposals to simultaneously repeal the Affordable Care Act (ACA) and reform the federal Medicaid program would be devastating to children and young adults with disabilities and complex medical needs. Even if the final ACA replacement plan continues to allow […]
